Steve Gleason: From NFL Stardom to ALS Advocate
A Hit Sundance Film Documents His Courageous Journey
The Sundance Film Festival 2016 played host to a powerful documentary that sheds light on the extraordinary life of Steve Gleason, a former New Orleans Saints defensive back who faced a life-altering diagnosis with ALS. This moving film takes viewers on an intimate journey inside the life of Gleason, exploring his determination to live a meaningful existence despite his physical challenges.
A Life-Changing Diagnosis
At the age of 34, Gleason was diagnosed with Amyotrophic Lateral Sclerosis (ALS), a progressive neurological disease that affects the brain and spinal cord. Given a life expectancy of two to five years, Gleason's initial reaction was one of despair. However, he quickly resolved to make the most of the time he had left and inspire others along the way.
Sharing His Story
One of Gleason's most poignant decisions was to create a video diary for his unborn son. As his physical abilities deteriorated, he recorded his thoughts, experiences, and messages of hope to his future child. These deeply personal recordings form the core of the Sundance-acclaimed documentary, offering a raw and unflinching look into the challenges and triumphs of living with ALS.
Inspiring a Movement
Beyond his personal journey, Gleason has become a tireless advocate for ALS research and support. He and his wife, Michel, founded Team Gleason, a non-profit organization dedicated to improving the lives of those affected by ALS. Through this organization, Gleason has raised millions of dollars for research and provided support to countless families.
Steve Gleason's story is one of resilience, determination, and the power of hope. The Sundance documentary captures the essence of his extraordinary journey, showcasing his unwavering spirit and the profound impact he has had on the lives of others.
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